At the beginning of treatment, many parents are told: “Your child has to survive to experience side effects.” And with so many surviving today many families are finding that while grateful for every day their child is alive, lifelong side effects are proving to be more challenging than initially thought. According to the National Cancer Institute, “survivorship focuses on the health and life of a person with cancer post treatment until the end of life. It covers the physical, psychosocial, and economic issues of cancer, beyond the diagnosis and treatment phases. Survivorship includes issues related to the ability to get health care and follow-up treatment, late effects of treatment, second cancers, and quality of life.” For most of our survivors, who actually deserve classification of “surviving” each day they are in treatment as well as post treatment, they may experience challenges in each of these areas at one point or another during their lifetime. Survivors deserve to do more than survive treatment, we must aspire to a much higher goal than simply preventing death. Many
survivors continue to struggle, surviving day-to-day challenges because of lifelong side effects that may continue to get worse over time. PREP4Gold commits to increasing support and services for survivors and families, and providing a higher quality of life.