Jonathan Eric Agin, JD
Jonathan Eric Agin, JD, is the Executive Director for PREP4Gold.
He is a Co-Founder and member of the leadership council of
the Childhood Cancer Prevention Initiative. Previously, he served
as the Executive Director for the Max Cure Foundation and was
also a co-founder of the Children’s Cancer Therapy Development
Institute, a non-profit childhood cancer research biotech located
in Beaverton, OR where he served as the General Counsel,
Institutional Official and Development Liaison. Jonathan was
nominated for and appointed to the National Cancer Institute
Brain Malignancy Steering Committee and is currently serving in
his second and final term as a Patient Advocate. Jonathan has also served as a Consumer Reviewer for the Dept. of Defense, Congressionally Directed Medical Research Program since 2018 where he assists in reviewing pediatric cancer research grants for funding. In addition, he was recently appointed to therole of Patient/Family Representative for the Data Safety Monitoring Board of the Pediatric Brain Tumor Foundation. Jonathan served as a long-time Section Editor for the Cancer Knowledge Network (Canadian Oncology Journal) and was a frequent contributor to the Huffington Post. Jonathan is a licensed attorney and a former civil defense trial lawyer from Washington, DC. He is one of the most recognized names in thechildhood cancer community. He has testified before the United States Congress on issues of identity theft impacting the childhood cancer community, which ultimately led to the introduction of bipartisan legislation named after his daughter Alexis (HR 2720, The Alexis Agin Identity Theft Protection Act of 2013). This legislation was later enacted into law as part of the overall budget deal of 2013. Jonathan’s legislative advocacy and collaborative nature have assisted in the passage of several significant pieces of legislation that directly impact children with cancer and their families. Jonathan has been a frequent speaker and panelist at various childhood cancer meetings andevents across the country, including being asked to provide public comment before the FDA pedODAC Committee on the topic of biopsy in children with DIPG (an inoperable and almost universally fatal pediatric brain tumor) as well as the application of federal regulations in connection with specific legislation. Jonathan became involved in the childhood cancer community following the diagnosis of his daughter Alexis at the age of two with DIPG in April 2008. Alexis battled heroically for thirty-three months until January 14, 2011. He is an original founding steering council member of the DIPG Collaborative.
Jonathan obtained a BA with a Minor in History from John Carroll University and graduated from the Case Western Reserve School of Law where he served as an editor on the Law Review. Jonathan resides in Falls Church, Virginia and has four children, Alexis (1-31-06 to1-14-11), Gabriel age 12, Trevor age 8 and Kylie 6 years and is married to Carly Israel-Agin who has three children.