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Jonathan Eric Agin, JD, is a Co-Founder and the Executive Director

of PREP4GoldChildhood Cancer Organization (www.prep4gold.org)

a 501(c)(3) nonprofit. Jonathan also serves as a legal mediator and

runs a law practice assisting corporate clients

(www.aginmediation.com). Additionally, he serves as the Chief Legal

Officer of the Metabolic Terrain Institute of Health. Jonathan was an

original Co-Founder, member of the Board of Directors, General

Counsel and Institutional Officer of the Children’s Cancer Therapy

Development Institute (www.cc-TDI.org), a non-profit childhood cancer research biotech located in Beaverton, OR. After being nominated and elected, Jonathan served the maximum six years on the National Cancer Institute’s Brain Malignancy Steering Committee where he was a Patient Advocate reviewing brain malignancy clinical trials for potential NCI support. He additionally participated on the National Cancer Institute’s Patient Advocate Steering Committee. Jonathan served as the Patient Advocate for the Data Safety Monitoring Board (DSMB) of the Pediatric Brain Tumor Consortium for five years, and previously served as a Consumer Reviewer for four years evaluating medical research grant applications for the Department of Defense’s Congressionally Directed Medical Research Program. Jonathan has been widely published having previously acted as the long-time Section Editor and frequent contributor for the Cancer Knowledge Network (Canadian Oncology Journal) and frequently contributed to the Huffington Post. Jonathan is a Co-Founder and original steering council member of the DIPG Collaborative.

 

Jonathan has lent his legal and communication skills numerous times to childhood cancer advocacy efforts. He testified before the United States Congress in 2012 on the issue of identity theft as it impacted the childhood cancer community, ultimately culminating in the introduction of bipartisan legislation named after his daughter and titled as HR 2720, The Alexis Agin Identity Theft Protection Act of 2013. This legislation was later enacted into law as part of the overall budget deal of 2013. Jonathan has provided public comment before the FDA pedODAC Committee on the topic of biopsy in children with DIPG as well as the regulatory implementation of the RACE for Children Act. He has been a featured presenter and panellist at numerous conferences and symposiums and has been interviewed by numerous print media outlets, as well as local and national news programs. Jonathan’s daughter Alexis battled DIPG heroically for thirty-three months until January 14, 2011. Jonathan is a licensed attorney in Washington, DC and Maryland. He resides in Falls Church, Virginia and has four children, Alexis (1-31-06 to 1-14-11), Gabriel, Trevor, and Kylie, he is married to Carly Israel who has three boys, Graham, Lincoln, and Desmond.