Mary Beth Collins
Board of Directors, Co-Founder & Vice Chairperson
Mary Beth is the mother of a 25 year old son who is a 23- year
survivor of neuroblastoma. As a parent advocate for most of
those 23 years, she has focused specifically on long term
survivorship issues. She has been a strong voice for the
children impacted by chemo-induced hearing loss, and
helped generate support for the development of Pedmark,
a unique formulation of sodium thiosulfate (STS) which
prevents platinum-induced ototoxicity in pediatric patients.
She sits on the Survivorship Advisory Council for Children's Cancer Cause and has been a contributing member of the Coalition Against Childhood Cancer's (CAC2) Advocacy & Survivorship committees for the past six years. Mary Beth writes the blog Survivorship Matters, featuring unique perspectives on an array of issues facing childhood cancer survivors and their families. She is the Social Media Resource Liaison for NCCS (Neuroblastoma Childhood Cancer Society), providing support and recommendations to parents at various stages of treatment and survivorship for their children. She additionaly has created a Facebook support page specifically for parents of teenagers/young adults and neuroblastoma survivors: Neuroblastoma Survivors - Transitioning Youth & Young Adults.
She brings over 30 years of experience in communications and 15 years of experience in nonprofit leadership. For seven years she was part of the peer review team for the Standards for Excellence nonprofit recognition/accreditation program. She has spent the majority of her professional career advocating for children's support and services for learning disabilities, behavioral disorders and executive dysfunction. Most of that time she worked in the autism community, establishing community partnerships and creating new programs for transitioning youth/young adults to build confidence and lifeskills to prepare for success in adulthood and the workplace.
For the past seven years she has worked as the Director of Programs for the National Association for Children of Addiction, advocating for awareness and support for children impacted by parental addiction and educating the community about adverse childhood experiences (ACEs) and the long-term effects of trauma in the household.
Mary Beth enjoys time with her two adult sons, gardening, listening to music, and being at the beach.